About the Organization

Headlines Craniofacial Support is a UK-based charity providing information, advice, and support to individuals and families affected by craniosynostosis and other rare craniofacial conditions.

Founded in 1993 by a group of parents, the charity now supports more than 2,500 members and works closely with the five NHS Designated Specialist Craniofacial Units across the United Kingdom.

Headlines provides support through:

• Family events and conferences
• Helpline services
• Psychological support
• Educational resources
• Community groups and peer support networks
• Research and awareness initiatives

Following the planned retirement of its current Director after eight years of service, the charity is seeking a new Executive Director to lead the organization through its next phase of growth and development.

Position

Executive Director

Location: United Kingdom

Work Arrangement: Remote

Employment Type: Part-Time

Salary: £60,000 per annum

Role Overview

The Executive Director will provide strategic leadership and operational management for the charity while working closely with the Chair and Board of Trustees.

This role combines organizational leadership, fundraising, financial oversight, stakeholder engagement, partnership development, and operational management to ensure the long-term sustainability and success of the charity.

The successful candidate will lead the organization through an important period of transition while supporting the charity's mission to improve outcomes for individuals and families affected by craniofacial conditions.

Key Responsibilities

Strategic Leadership & Governance

Work closely with the Chair and Board of Trustees to deliver the charity's mission and long-term strategy

Lead implementation of operational plans and organizational objectives

Serve as a positive leader and role model for staff, volunteers, and stakeholders

Ensure compliance with:

• Safeguarding requirements
• Data protection regulations
• Charity governance obligations
• Legal and regulatory responsibilities

Operational Management

Provide day-to-day leadership of the charity's activities and staff

Set organizational priorities and performance objectives

Support effective delivery of services and member programs

Maintain strong operational systems and processes

Financial Management & Fundraising

Work closely with trustees and the Treasurer to ensure sound financial management

Support financial sustainability and appropriate allocation of resources

Develop new and sustainable funding streams

Lead fundraising initiatives and grant application activities

Identify innovative opportunities for income generation

Events & Member Engagement

Oversee the charity's events program, including:

• Family Weekend
• Conferences
• Community events
• Awareness activities

Ensure services continue to meet the evolving needs of members and families

Partnerships & External Relations

Act as an ambassador for the charity

Develop relationships with:

• NHS specialist units
• Medical professionals
• Partner charities
• Research organizations
• Community stakeholders

Support collaborative initiatives within the UK and internationally

Communications & Awareness

Oversee communications and marketing activities

Increase awareness of craniofacial conditions and the charity's work

Support member engagement and public outreach efforts

Essential Qualifications & Experience

Demonstrated leadership experience within the charity or nonprofit sector

Proven fundraising and income-generation experience

Strong budget management and financial oversight capabilities

Experience leading and motivating staff and volunteers

Excellent communication, presentation, and stakeholder engagement skills

Experience developing sustainable funding streams

Strong organizational and project management abilities

High level of digital literacy and understanding of online communications

Knowledge of charity governance, compliance, and regulatory requirements

Ability to work effectively with remote teams and stakeholders across the UK

Desirable Qualifications

Experience working with a Board of Trustees

Experience within healthcare or health-related organizations

Knowledge of inclusivity and accessibility principles

Experience commissioning or supporting research initiatives

Degree or equivalent qualification

Work Arrangement

Part-Time

Remote

UK-Based

Travel required for:

• Family Weekend events
• Conferences
• Fundraising activities
• Board meetings
• Scientific and community events

Occasional overnight travel may be required.

Candidate Note

While this position is listed as part-time, the scope of responsibility is broader than many part-time leadership roles and includes fundraising, staff leadership, board engagement, financial oversight, partnerships, communications, and national event participation.

Candidates should confirm expected weekly hours and workload expectations during the interview process to ensure alignment with their portfolio or fractional commitments.

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